World Federation of Hemophilia / Fédération mondiale de l'hémophilie | Company Profile - Revenue, Headcount, Tech Stack, Contacts

An international non-profit organization based in Montreal, Canada, established in 1963, dedicated to enhancing care for individuals with inherited bleeding disorders, including hemophilia, across 152 countries. Founded by Frank Schnabel, who had severe hemophilia, its mission is to unify patient organizations and improve global care standards for bleeding disorders. The organization is recognized by the World Health Organization and is led by President Cesar Garrido.

Education and training is provided for healthcare providers and National Member Organizations to strengthen local care capabilities. Evidence-based treatment guidelines are developed, and an eLearning platform offers resources on bleeding disorders. The Annual Global Survey gathers advocacy and resource allocation data, supporting humanitarian aid programs and organizing international congresses to promote knowledge and awareness. Digital tools, like the World Bleeding Disorders Registry, are offered to help enhance treatment outcomes globally, with a vision to ensure universal access to care for all individuals affected by bleeding disorders.